Navigate to [https://thecrid.org/index.php](https://thecrid.org/index.php)

GO TO YOUR EMAIL ACCOUNT:

You will receive an email with a link to confirm your account and login to complete your registration and create a CRID.

Enter our newly created username and password.  Click "LOGIN"

Enter Disease information for the patient.

Note: This information is typically present on report of genetic testing. Here are examples of how to enter details.

DISEASE NAME: CLIFAHDD, IHPRF1, IHPRF2, etc.

GENE: NALCN, UNC80, UNC79, FAM155

GENETIC VARIANT: If you do not have just leave blank.

You can download the CRID image or information to save to your computer.

Thecrid

In preparation for the RARE-X Launch, the ability to connect participant data across multiple sources is crucial for working together on rare diseases. CRIDs (Clinical Research IDs) are a tool to make this connection. They give individuals in research a unique universal ID, making it simpler for doctors, scientists, and patients to centrally share and access information to collaborate effectively as a team.

How to Setup CRID (Clinical Research ID)